Panama 2019 Day 15: Gracias a Dios

When I’m here long enough, I even start to talk like the Panamanians.

Gabrielito was seen in Panama City late on Thursday afternoon by a cardiologist in the private pay system. Right after, Gloria texted me that after an EKG, a physical exam and a look at the echo taken previously, the cardiologist is not particularly concerned. He recommended that Gabrielito be evaluated every three months rather than annually, but other than that there are no changes needed in his treatment.

I don’t know what the person who first evaluated the echo saw that the cardiologist did not consider significant, but if Fani had been able to ask more questions, the anxious rush to Panama City might have been avoided.

I hugely appreciate the friends, family and colleagues who were willing to weigh in. They made Gloria and her family feel that their much loved little boy mattered, a rare thing in the lives of these good and decent people who rarely catch a break.

8 thoughts on “Panama 2019 Day 15: Gracias a Dios

  1. for Randi: I imagine you are no stranger to receiving contradictory information about a child with complex medical needs. I’m wondering if you’d share what that is like for you as a mother? Certainly not asking you to reveal any confidential information about your family, or to violate your daughter’s privacy. But what is it like to hear one thing from a doctor, something that has potentially very serious implications, and then a different thing, albeit better news, from another? I imagine it must be head-spinning. The word count in a blog post is about 250, so had to be concise. But I and I imagine my readers would be interested.

  2. It is difficult navigating the medical system and when it is your child, it becomes all- consuming. One time we received news that Jamie’s kidneys were not functioning and she would go to the top of the transplant list and receive dialysis in the interim. I remember feeling sheer panic and heartache for my tiny daughter. I did not want to have to be an “expert” in kidney disease, along with all the other medical issues that Jamie had. The lab results were incorrect and her kidneys were fine. The relief was overwhelming. I had held it together during the crisis, but I fell apart when we received the good news. There is no greater pain than receiving devastating news about your child and no greater joy than learning that she is actually going to be fine.

  3. Thanks for sending the good news, via email and blog. Closer monitoring right now sounds like a good approach, and I hope Fanni and Gloria got a good explanation about the findings.

    Thanks for sharing your story, Randi.

  4. for Randi: I’d like to post this as a blog entry, because not everyone reads the Comments. Pls. confirm OK. Will identify you as “friend and regular reader Randi” unless you’d like something else. Let me know. Thanks for this. Just what I was looking for. Ran into Fani today at the grocery store where she works. She was beaming and looked relaxed for the first time since we got here.

  5. for Phyllis: Will post more for blog tomorrow. They did get an explanation. Not sure you or I would call it a good one.

  6. Feel free to use it in any way you would like. We have so many “medical memories” – some bad, but many good ones, as well. No matter the situation, the stress is significant when your child is involved. Jamie has always surprised us with her resilience through many difficult and painful situations. She has been my greatest teacher when it comes to handling adversity.
    So glad Fani has a reprieve from anxiety. I pray she will always have that smile on her face!

  7. for Randi: Fani gets much support from Gloria and Luis, but she is now a single mother facing all of this. I admire her very much. Her love for her children is strong, and a source of joy and pride for her. I trust that her resilience will carry them through.

Leave a Reply

Fill in your details below or click an icon to log in: Logo

You are commenting using your account. Log Out /  Change )

Google photo

You are commenting using your Google account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s

This site uses Akismet to reduce spam. Learn how your comment data is processed.