Lily sees her grandmother often, and she is noticing that Minga seems markedly diminished in terms of physical strength and overall engagement with life. I think my going next week is timely.
I’m ready to make a strong push for Minga to go home and receive manual peritoneal dialysis there, no matter how long she has left to live. I’m concerned that I may find, even next week, that she is too frail to undergo the surgical procedure to change the catheter now in her jugular vein to one in her abdomen — a requirement for changing the kind of dialysis she is receiving. I’m not sure what I’ll do then. She has a right to die at home, if that’s what’s going to happen. But I’m not sure how quickly, or how, we can arrange for peritoneal dialysis in the village.
Such a complicated path forward, and such constrained options. I wanted them to have the catheter changed already and the new plan in process, but Lily is reluctant to do anything before I get there and can talk with Minga. I understand — she is navigating complicated family dynamics, and doesn’t want to get too far out ahead of the situation.
I leave next Tuesday, and will keep everyone posted as I assess things with my own eyes.